大魔王凯特·布兰切特 | 呼吁关注脆性X染色体综合征患者

When he was just 20 months old, Stuart swallowed a penny. His mother put her fingers right down his throat and got the coin out. But afterwards, she said, maybe I should have left it there.

斯图尔特20个月大的时候吞下了一枚硬币。母亲把手指伸进他的喉咙里，把硬币取出了出来。但后来她说，也许我应该把它留在那儿。

It was clear from the beginning that there was something very different about Stuart. Doctors couldn’t diagnose him. He loved music though, it was always his escape. His mother was a musician and she used to play the piano for him and he’d drift away.

显而易见的是，从出生开始，斯图尔特就与众不同。医生无法诊断他得了什么疾病。他喜欢音乐，这是他的避难所。他母亲是一个音乐家，她过去常为斯图尔特弹钢琴，他会高兴的手舞足蹈。

When he was 8 years old, his mother died. After that, no one knew how to care for him. Stuart was institutionised then for the majority of his life. He was transferred to a psychiatric hospital called Morissette when he was 20. A terrifying place where he was drugged and abused. It’s closed down now.

8岁那年，他母亲去世了。在那之后，没人知道该如何照顾他。斯图尔特一生中的大部分时间都是被制度化的。20岁那年，他被转到一家叫莫里塞特的精神病院。在那个可怕的地方，他被注射各种药物，被虐待。现在，它关停了。

His sister Robin would visit him there, he’d have bruises and cigarette burns on his body. For 40 years, Stuart was more or less alone.

他的妹妹罗宾会去那里看他，他身上经常会有瘀伤和烟头烫伤。从某种程度上说，40年来，斯图尔特都是孤身一人。

Robin: [One time he rang me up and he was just crying his eyes out, sobbing over the phone, Robin, Robin, Robin. And I said Stuart, I’ll come and get you. So I went up, got him and I brought him here, and he was perfect.]

罗宾：[有一次他给我打电话，他在电话里痛哭流涕，一直抽噎喊着罗宾，罗宾，罗宾......我说，斯图尔特，我会来接你的。所以我把他接回来带到了这里，他现在很好。]

Stuart is 60 now. He was diagnosed with Fragile X 4 years ago. Times are different now, we know how to help people with Fragile X. Stuart has had a lifetime of drugs, abuse and misunderstanding. He still loves music though. He still gets taken away.

斯图尔特现在60岁了。4年前他被诊断出患有脆性X染色体综合征。时代已经不同了，我们现在知道如何帮助脆性X染色体综合征患者。斯图尔特的一生充满着药物，虐待和误解，但他仍然喜欢音乐。他现在依然很开心。